Cyclists Join the Fight to Find a Cure for Cystic Fibrosis
The Cystic Fibrosis Community and the Utah – Idaho Chapter of the Cystic Fibrosis Foundation will host the 13th annual CF Cycle for Life as part of a national effort to raise funds and awareness for cystic fibrosis. This year’s ride will take place in scenic Summit County and is supported by CF Families and Utah SAG along the entire route.
“I’ve been privileged to be involved with the CF Ride here in Utah since it began,” stated avid cyclist and CFF supporter Brandon Ross. “I have a brother-in-law with CF and I couldn’t be more proud to be riding on his behalf. The CF Foundation has done an incredible job of picking one of Utah’s most scenic routes for this event. The ride is quickly becoming one of Utah’s premiere fundraising rides because of their efforts to have a well-supported, well-marked and safe route. And when I say well supported – you won’t come away hungry or thirsty! This is absolutely a highlight of the cycling season here in Utah.”
CF Cycle for Life event details:
Saturday, August 17th at John’s Park in Henefer, UT
CF Cycle for Life is a fully-supported ride with route options of 10, 25, 40, 55, 75, 100 miles. From a grab-and-go breakfast to the cycle post party, you can enjoy fully stocked rest stops every 10-12 miles, bike mechanics, and support vehicles to help you complete your ride. Afterwards, enjoy a catered lunch and tickets to the beer garden hosted by Shades brewing. Take your ride to the next level by signing up today and help make CF stand for Cure Found
How to Register
To get involved in CF Cycle for Life and help fight CF, please call the Cystic Fibrosis Foundation Utah and Idaho Chapter or visit https://fightcf.cff.org/UTcycle.
About Cystic Fibrosis “CF”:
- Cystic Fibrosis is a progressive, rare, genetic disease that causes long-lasting lung infections and limits the ability to breathe over time.
- More than 40,000 children and adults in the United States are born with CF (105,000 worldwide) and CF affects people of every racial and ethnic group.
- In people with CF, mutations in the cystic fibrosis transmembrane conductance regulator (CFTR) gene cause the CFTR protein to become dysfunctional. When the protein is not working correctly, it’s unable to help move chloride – a component of salt – to the cell surface. Without the chloride to attract water to the cell surface, the mucus in various organs becomes thick and sticky.
- Cystic Fibrosis requires highly specialized care. CF Patients require quarterly visits to the Foundation’s one of two accredited care centers in Utah: The University of Utah and Primary Children’s Medical Center.
- To maintain their current health level CF patients typically do 2 hours of treatments a day and take 30-50 pills.
A little about Cystic Fibrosis “CF” and the Cystic Fibrosis Foundation:
- The Cystic Fibrosis Foundation was established in 1955 by parents looking for an answer for their children. At that time people born with the disease weren’t expected to live to attend elementary School. Through the CF Foundation’s efforts, the median life expectancy of a child with CF increased to 61 years old in the last 30 years. Research to find new breakthrough therapies and a cure are more promising than ever before.
- The CF Foundation is the world’s leader in the search for a cure and has raised and invested hundreds of millions of dollars to help develop CF drugs and therapies.
- Nearly every CF drug available today was made possible because of the Foundation’s support and our ongoing work with researchers to find a cure.
- Our relentless determination to improve and prolong life has made a dramatic difference for people with cystic fibrosis.
- CF is no longer exclusively a pediatric disease. Today, more than half of all people with CF are older than age 18. Many people with CF can expect to live healthy, fulfilling lives into their 30s, 40s, and beyond.
